Our 6 month old daugther, Gracie, has to have an MRI of her brain and spine on December 26th. The doctors believe she could have Sturge-Weber Syndrome - symptoms of this include seizures, glaucoma, and motor/cognitive delays. Gracie has not experienced any seizures but she has motor delays and a Port Wine Stain (PWS) birthmark on her face and over her eye (this is a sign of Sturge-Weber). We know that God is in control and He will hold us in His loving arms. We feel at peace that whatever may be wrong with Gracie - we can handle it with God's provision. We're most anxious about her MRI because she has to be sedated. We just don't like to think about seeing our precious lil' princess like that :(. We appreciate your prayers for our sweet Gracie Girl and your prayers for our strength during her MRI and as we learn the results.
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